It seems like every medical condition out there has a non-profit or foundation associated with it that provides education for the public and medical community, drives fundraising, and funds research to look for a cure or treatment. Why is it that salicylate sensitivity lacks that? It seems like there are a few disparate publicly funded entities (public hospitals and clinics) that have made some decent traction in providing the occasional research article, but nothing seems cohesive, they are spread all over the globe, and progress is only made once-in-a-while.
My goal is that a group of people would feel encouraged to spearhead a non-profit organization in five years (2026) for salicylate sensitivity. What could a non-profit do for us?
- Fundraise – research and education requires dollars. A non-profit can both collect donations and disperse, and also look for new donors and do active fundraising.
- Increase Public Awareness
- Educate new patients on how to live and what to eat
- Educate medical professionals on diagnosis best treatments
- Fund new research – both clinical trials and food tests
- Help people find or run support groups
- Work on legislative initiatives – like better food labeling (ingredients) or food-manufacturing labels (how something is grown or made)
- Create a logo/label that indicates food is safe for consumption
- Create a map with organic local farms providing foods that are not sprayed or animals not treated with harmful “natural salicylates”.
Here’s a video with some of my thoughts: