We are getting a great community together - thank you for joining me as I maneuver through this crazy path of managing food sensitivities. I wanted to make a proper channel welcome and set a few house rules, just so we're all on the same page. This also covers a finance plan - which I think is important for understanding motives and what a person might be selling (or not selling) you. I'm looking at a sustainable way to continue to fund the mission without any conflicts of interest.

 

 

Topics covered:

  • Welcome to the channel! 0:00
  • Who am I, what are my credentials? 1:43
  • Channel Purpose: 4:56
  • Channel Rules: 7:47
    • Be nice and courteous to others
    • No black and white mentality
    • No foods are evil
      • I'm a big fan of the proverb "everything is permissible, but not everything is beneficial". Sometimes, the low-sal and food sensitivities diet wears you down to the point of only finding what is permissible. It's ok to be there for a while. It's part of the journey, and as you come out of this hole, you will start to be able to finesse your diet and find out what is actually beneficial. Using fear tactics in the community saying everything is going to cause cancer, is not ok.
    • Assume that everyone probably has a different tolerance level than you, and they may have a different sensitivity profile than you
    • Assume we're united by symptoms not cause. Symptom= salicylate sensitivity (not the reactions)
    • We cannot assume one "cure" will work for all
    • I will rarely provide information for cures or treatments, besides reducing or avoiding salicylates (unless backed by medical associations or peer-reviewed research)
  • How the mission is funded and conflicts of interest (or lack of): 19:44
    • My channel will always remain not sponsored, if I choose to feature a product, it's because I've used it and probably like it - OR someone recommended it.
    • Once approved for YouTube monetization, I hope to make some money off the ads. YouTube doesn't promote channels that aren't monetized. In my situation, I am not monetized (Dec 2021) and they are still playing ads on my videos anyway.
    • You can support me through a contribution through Buy me a Decaf Coffee (processed PayPal or Stripe)
    • Buying through the Amazon Affiliate links on videos and through the directory, supports me (about 1% of total purchases, US only) and costs you nothing.
    • Funds coming in, go to support the basic functioning of the site like hosting, plugins, paid-projects, and then for my time to film and manage this project.
      • After bills are paid, half will go toward more development on the site or maybe food testing someday!! I'm still looking for a lab to do testing.
      • The other half will go to pay off that shiny Biology degree's student loans.

Thanks for watching and being apart of the channel community!

Video Transcript/Captions

Provided for visual learners, improved accessibility, and for translating the page


00:00
hi everyone and welcome to low-sal-life my name is sarah verlinde-azofeifa and on this channel
00:05
we talk about salicylate sensitivity and basically the research and also how to manage or live with
00:12
salicylate sensitivity so it's a little bit of a weird thing and there's not a lot of information
00:17
on it and so that's why i'm here to help you through your journey and also you help me through
00:23
my journey too which is so wonderful to know other people that are in the same boat as you so in
00:29
today's video i'm just going to introduce four concepts of what is basically who i am and why
00:39
i am a subject matter expert and why you should believe me the second thing that we'll talk about
00:47
is what is the purpose of the channel third thing we'll talk about is what are the channel rules
00:53
yes when you get you know 1000 people or more gathered together you can always expect a little
01:00
bit of chaos so we got some rules and then the fourth thing we're going to talk about
01:03
is how and if and why i make money through this platform and how those expenses are done so
01:12
every year i plan on doing like a monetization fiscal transparency thing just
01:19
like everything any good projects you have to have a business plan whether you're non-profit or
01:26
for-profit and so we're going to talk about that just so that you guys can understand what my
01:30
purpose is and that also should support the reason why you can believe or trust the information that
01:38
i'm putting out so it's kind of the whole package i feel like it's very important let's start off
01:43
with number one who i am my name is sarah i live in washington state in the united states and i
01:52
have probably had salicylate sensitivity my entire life if you look through my health history it is
02:00
pretty spotty in a lot of different places i've got a couple of videos there is one my journey
02:07
something about my journey why i stopped eating fruits and vegetables it's kind of lengthy
02:12
i call it my public service announcement somehow it's one of my most popular videos
02:16
i don't even know why but that kind of gives you an idea of everything that i've been through so
02:20
you can watch that video it'll be linked in the description not in the comments in the
02:24
description so you can check that out i have been diagnosed i guess my journey really is everything
02:33
that like is not diagnosed with and then i came across salicylate sensitivity on my own
02:39
and have therefore confirmed it also with my doctor and so we're all good between the two
02:44
of us so that's i'll say i've been diagnosed with salicylate sensitivity now for four or five years
02:49
which has been amazing best thing ever the second best thing for food and things that make me sick
02:58
is i also am really sensitive to folic acid so it was something i discovered a few years ago too
03:04
before this salicylate sensitivity yeah during that process i've always been really interested
03:08
in biology i did get a biology degree graduated in 2015 it's a bachelor of science i focus mostly
03:17
in botany and oddly enough i'm researching researching willows which happens to be
03:26
you know salicylates Salicaceae well salicylates are named from willow anyway it's it's a long
03:33
story but you do what do you do -you know people study ebola... i'm just studying plants okay so
03:39
with that i do have a really good understanding of how to study and read research i am not currently
03:46
working on a master's or phd or anything like that and not doing any active research
03:52
besides my botany projects so with that i know how to
03:55
read original research articles i think that there's a really big distinction between
04:01
research as in reading other people's research and actually doing experiments we can talk about
04:05
that some other day all of that to say is i've got a pretty good understanding of how to read
04:11
and understand research and think about it but i am not a researcher on salicylates and i'm also
04:18
not a doctor nor a dietitian nor nutritionist or anybody in the health and medical profession
04:25
and ultimately the only reason why i could be considered an expert is that this is just me
04:31
and my life and i have to deal with this and what are the things that i learned that make
04:36
my life easier so that i can eat food and go places without you know getting really
04:41
sick from other people's fragrances and things like that so that is that that is
04:47
my credentials so the next thing we're going to talk about is what is the purpose of the channel
04:52
so my biggest reason for building this channel is so that other people can learn about salicylate
04:59
sensitivity that there can be a following that people can be like oh i also heard about
05:04
this as a food intolerance so maybe you can try that since everything else you've tried
05:09
hasn't worked so really my thing is i want people to understand and be educated about
05:16
salicylate sensitivity and that is for a couple of people 1. is for the sick people that need
05:21
to learn about it 2. you know for the people that know that they have it how they can manage
05:26
and also understand it and what can they learn about it from you know tiering up you know you
05:33
learn about what list works for you and then you learn about like what are the pathways and what
05:38
is it all it and is there salicylates and wildfire smoke or in trees or you know things like that so
05:46
for the people also having really good resources for doctors and researchers so that if there's
05:52
ever a time that they want to kind of bone up and see like a full you know close to dissertation of
05:59
information they can go to my site and find all that information and also i try and write
06:05
comments about why i like an article or i didn't like an article and so i can start helping others
06:11
with that process the second reason for this channel and group and website is i want to build
06:17
a community it's been great already just kind of getting to know like some of the people who are
06:22
constantly on social media or publishing content whether it's in a facebook group or through
06:29
instagram i really enjoy learning besides you and trying to figure out problems and trying to
06:36
make things better to explain and you guys send me research articles so i can put on the website
06:41
and you guys tell me about what products work or don't work for you and other people can come and
06:46
read those comments like it's a really great idea if if we have a bigger community you know like
06:52
some of the the facebook groups have like seven eight thousand people in them a lot of them are
06:57
watchers right just kind of learning about this the whole system right but you know if we can get
07:03
a big community then we could you know essentially have a good pool of people that if a researcher
07:11
wants to you know start some clinical trials or if a non-profit starts that there's a community for
07:18
you know an audience or community so that is one other reason to have this group here and
07:24
it'd be really great to be able to make those connections a lot faster than you know sending out
07:30
a random email to dozens of doctors everywhere all over the world you know like it's just crazy so
07:38
trying to build up a community all right so now we're talking about the rules of the channel so
07:42
i've got a couple of things that you're going to learn about me and that is and i think a lot
07:49
of this just has to do with how i was trained as a biologist even in taxonomy we say you know
07:55
this these animals have eyes generally but and there's always an exception for every category
08:02
like they're like every exam you can be like okay this is the rule except for in these cases
08:09
i am not a black and white person i understand things as more like gradations right so that's
08:17
really really the way that i think about things okay so with that one of obviously my first rule
08:24
is you know being nice to other people and you know me and you know just be courteous and polite
08:33
all right moving on number two number two is that i am never going to call a food evil
08:44
you might have your reasons for thinking that a food is off-limits but if
08:51
everybody comes into contact with food or an ingredient
08:56
for different reasons so all you folks that think that seed oils are evil and there shouldn't be
09:02
even on my list because they're going to cause heart disease or something else in the future
09:08
you know that's fine i think that there should be education around that but there if a person
09:18
can't consume anything except for seed oils they should consume seed oils like they're going to
09:24
die of malnutrition or lack of calories before they're going to ever get to heart disease right
09:30
so i'm just saying anything seed oils soy dairy gluten everybody has their own thing so
09:41
you know at the the most important thing and some people are so sick from this condition is first
09:49
of all get your calories second of all stop the reactions third then you can kind of finesse and
09:57
decide what works in your diet or what doesn't like i i prefer to eat mostly animal products
10:06
i could be vegan and do low sal i think it would be really hard and i don't encourage
10:13
it but if that aligns with your ethics do that but i know that if i eat too many carbs
10:22
in a day that you know or maybe to have too much fiber that i don't feel very good with
10:26
that but that doesn't mean in my mind that carbs are evil because some people do really well with
10:32
them so again gradation i can assume that you know people that there's going to be variation
10:42
and also with the seed oils i like to use canola oil for my massage massage oil if i ever go and
10:50
get a massage so it's like the best one right i'm not gonna put coconut oil on my skin obviously
10:56
but let's say i do think ingesting seed oils is still bad for me that doesn't mean that you
11:02
can't use it in your cosmetics or you know to clean a pair of rubber boots or to put
11:08
oil on your skin there's still uses for those ingredients even though you it might not be ideal
11:16
to eat it so just just a couple of things no food is evil on my list unless it's a carcinogen
11:22
like pretty high up there and banned then i'm gonna probably say no i want to go back
11:26
to the not black and white thing so this is also like a biology idea there is an idea of
11:34
population like histograms so you know you have variation in population where you know average
11:40
heights for humans can range from like 4 10 to 6 6 or whatever and then you're going to have like
11:47
a peak in the middle where like the majority of people sit and then you have people on the
11:52
edges right you're not going to come across a lot of seven foot people but they exist
11:57
so just because you've got people on the fringes you know that's something to think about so
12:04
i just want you to kind of think about that even though things might seem black and white to you
12:09
that doesn't mean that it is on the back end for systems for example blue eyes you know
12:15
people call it a mutation it's just a variation right essentially but basically on the front
12:21
end it looks like a black and white on and off switch you have blue eyes or dark eyes right so
12:29
in reality the back end like it has to do with how much protein you actually have and you can
12:36
have a varying amount of protein and once you hit a threshold then you can have dark eyes so
12:43
on the back end there's actually this gradation of pigment in order to turn on the thing so from
12:52
our point of view it looks like an on off system but from the back end it's actually a gradation
12:58
so just something to think about and you know how systems work in biology and black and white and
13:03
good or evil and all that stuff okay this is another rule number three everybody has different
13:11
conditions that may contribute to salicylate sensitivity so this is a two-part set of rules
13:20
one is i have a really hard time because like for me i am mostly only salicylate sensitive
13:27
i don't have a problem with ambience i don't have any other intolerances that
13:30
i know of besides the folic acid b vitamin issue and then also a set list of allergies
13:37
which include dust mites and feathers grasses things like that so when i come to the table i
13:44
say i'm slightly sensitive with these other conditions and i have my dystonia
13:48
too which is kind of a big deal so other people will say well i can't eat that
13:54
and you know and it's like okay but do you have amine sensitivity you know that's really
14:00
helpful if you write in the comments like i have amine and salicylate sensitivity so
14:05
i'm going to so and i can't consume this that way if somebody only has salicylate sensitivity they
14:10
can be like i think that might have an amine in it so i'm going to try it out anyway so something to
14:15
think about that caffeine is a good example of that so the combination is interesting because
14:20
salicylates and amines you know you you have certain restrictions associated with allergies
14:26
salicylate with fragrance sensitivity like my husband's really fragrant sensitive chemical
14:31
sensitive like and there's times when i'm like oh that doesn't bother me like acetone
14:36
paint fragrances exhaust from a car like he doesn't have any salicylate problems but he
14:44
has these like interesting fragrance sensitivities or chemical sensitivities but i don't have them
14:52
so like you know imagine if i had both of those like i'm gonna be more sensitive right so that's
14:57
just something to think about that you know we're humans we've got a lot of different problems going
15:01
on so that's another reason why is saying like this is evil or like i can't use that that's not
15:09
very helpful it'd be more helpful if you say i can't use that and i have salicylate sensitivity
15:15
and fragrance sensitivity or something like that so number four is assume that we are united by
15:22
symptom i'm gonna say that again assume that we're united by symptom not by cause
15:32
we don't know what causes it [mumbles] i can't even say it salicylate sensitivity we don't know
15:38
what causes it right we have theories ideas pathways all that stuff but really until the
15:46
american medical association says yeah this is the condition and this is what the cause like we
15:52
don't know what causes it i think that and this is what i've observed from having muscular dystonia
16:01
it's really hard to get a condition diagnosis for something that can be kind of categorized
16:09
by symptoms because we don't always know what the cause is so it gets a little bit
16:14
hard to unify it as one condition so with dystonia you can have the same symptoms sometimes
16:24
in different places sometimes with different like spasm types but ultimately sometimes it's
16:32
you know a dna problem number one sometimes it's a dna problem number two sometimes it's
16:37
just from injury sometimes it's just because your body doesn't work that great sometimes
16:42
it's just in your head right so there's five different reasons right there that causes dystonia
16:48
which is the symptom right we're just describing the problem salicylate sensitivity is the same way
16:55
it's really interesting when you know i've done a few like meet and greets online all the different
17:00
people that come out because some people only have muscular pain from salicylates and some people
17:05
have histamine reactions some people are using it for a treatment because they have some type of
17:10
blood or anemia and the thinning of their blood makes them bleed more so there's all of these
17:17
different reasons to both do a [low] salicylate [diet] or that could be causing it i think
17:22
and so we should assume that we're not all coming to this community with the same cause
17:31
okay and that leads me to my next rule number five i am going to be really hesitant to offer any kind
17:39
of cure or treatment for salicylate sensitivity i am happy to recommend like ideas or like people
17:46
have said this or this is the research article everybody's talking about like eating cayenne for
17:53
for you know reducing your reactions because it worked in rats okay so i'm going to be
18:00
really hesitant about offering any cure or treatment which is another reason why
18:04
you should really you know kind of listen to me because i'm not here to sell you anything
18:09
i don't i don't have anything to sell i don't have a treatment i don't have a pill
18:12
i don't i'm not gonna recommend and we'll talk about it but i'm gonna be really hesitant to
18:18
recommend that you go and stock up on glycine or iron or vitamin b's or you know whatever you
18:27
cayenne pepper whatever it is i'm going to be hesitant to recommend
18:32
so the second part of that is remember i am not a doctor nor a dietitian nor nutritionist
18:40
nor a biochem expert and so with that i'm gonna be even more hesitant to offer treatments i i
18:47
have a really big problem with this if you can't tell but yeah i'm not gonna do that and even if i
18:52
were let's say i am a doctor let's say i go back to med school and you know come back as a doctor
18:56
not gonna happen but let's just say even still i'm not your doctor or your nutritionist or your
19:05
dietitian i you need to talk about treatments with your doctor who knows all of you again because
19:10
many of us have several different problems or maybe several different sensitivities you really
19:15
you really need to talk to your doctor i know it's really hard to find one who won't think
19:19
you're crazy who you probably who won't think it that's in your head and that's the reason
19:26
this website's getting built out you can give them some references and or send them a video link or
19:32
something and so that that's that's the goal all right the last part that we're talking about is
19:40
monetization and fiscal transparency now i'm only including this because not-for-profit hobby
19:50
or business you need a financial plan and my time is valuable and so this is just a little portion i
19:59
just wanted to include somewhere because i think that it's important that we as a community do
20:06
fund the mission like i can do this for free and that's fine and i am essentially right now but
20:13
you know we got we got to talk about some things the first thing is that you can support the cause
20:20
by basically like watching the videos subscribing on youtube it just tells youtube that you like me
20:30
commenting in the the bottom you know even if you just give a thumbs up or just say hey thanks or
20:39
i appreciate it or something like that that's helpful that tells youtube that
20:42
people are finding value in this and that they should recommend it to others so that's all good
20:48
also -- by commenting you are also encouraging other people to learn more about the topic so
20:58
that's also really helpful speaking of youtube after after you get to a certain amount of people
21:04
at a thousand subscribers and then so many watched hours you can actually monetize your
21:08
videos so what that means is that an ad will play before the video if it's a really long
21:15
one maybe a couple in between in between that's nice because then it compensates me for my time
21:21
you know that will be really nice when i get there i'm obviously a small channel now
21:26
but i do want to say that even if i turn that off once i get to that point youtube actually
21:37
won't share my videos anymore because they're not interested in sharing videos that don't
21:40
have ads on them right so even if i wanted to be completely like income free revenue free from that
21:48
then i would get punished and fewer people would learn about salicylate sensitivity so
21:52
that's kind of a buzz kill the second thing is that youtube is already monetizing my
21:58
videos you probably got to watch an ad for this at least the more popular videos every once in a
22:03
while i'll go back in just to see like oh i wonder what i said here or you know look for something
22:10
and my video will play and i have to watch an ad and that's really discouraging on my end because
22:14
i'm not making money off of that youtube's making money off of my effort so that's really annoying
22:19
so just to let you know if you see ads on videos it doesn't mean that the contributor is actually
22:24
getting paid and even if i hit the thousand person mark i've done so few videos this year that
22:32
i i gotta work on my watch time hours so you'll be seeing more content from me in the future
22:40
okay so there are two ways to directly support me monetarily and that is one shopping from my
22:48
directory i have a directory of products so if you're in the united states you can like let's say
22:54
you need to go buy toothpaste and you know it's on my website or if you're shopping for toothpaste
22:58
you want to see like what the options are you can go and click on you know find find the item
23:05
and then click on the amazon link and that will take you to amazon it doesn't cost you anything
23:10
but i do get like a one percent commission on it for recruiting people to buy off of amazon
23:16
right now i don't have any other affiliate marketing set up someday i might do etsy or ebay
23:24
like some of those might seem reasonable but right now i don't have that set up even if another way
23:31
anything that you order off of amazon still supports me so if you're gonna buy some christmas
23:35
shopping or you know do some back-to-school shopping or vacation shopping or something like
23:39
that and you you know you're gonna spend like you know $300 or whatever go and click on that
23:44
toothpaste link go and go do your amazon shopping after that and you know it'll support me so that's
23:52
that's really nice another way that you can help contribute to my channel is off my website there's
23:58
a link for buy me a coffee and i think maybe off the youtube link buy me a decaf coffee and
24:03
that i have set up paypal and stripe on there and off of there you can make a direct contribution
24:08
to me and i greatly appreciate it so thank you if you've already done this i i do appreciate it and
24:14
it always makes my day the other thing about monetization and this is another thing about
24:20
about kind of the ethics of my channel i'm not trying to sell you anything i really don't have
24:25
anything to sell like i don't have any supplements for you to buy i'm not going to oh yeah i i won't
24:32
do sponsorships so you don't have to worry about that i'm not going to advertise to you
24:37
other products everything is free of monetization that way i i don't have anything to sell i'm not
24:44
a dietitian or a nutritionist nutritionist or holistic doctor or anything that's trying to get
24:50
recruit new patients and do consultations or anything like that like it's just it's really
24:55
free to you content and i just want that to be very clear so you guys know where i'm coming from
25:01
and then also that you consider what other people are how other people are providing information
25:06
to you and if that information is truly free just throwing that out there okay and then i do want to
25:12
talk about when money comes in how that is kind of split up so one is the cost covers website costs
25:20
so that you know website website maintenance hosting a couple hundred dollars second goes to
25:28
my time so my time to update the website and then also make the youtube videos generally it's about
25:35
eight to twelve hours a week job if you're seeing me post content regularly so i'm trying to figure
25:42
out ways that i can you know reduce the amount of time i do video editing or figuring out how i
25:49
could increase instagram posts things like that so it's kind of a hard balance when i work full time
25:55
and also cover the cost of products reviewed so if there's a new toothpaste while i'm fine using
26:00
my chocolate fluoride toothpaste every single day maybe my viewers might be interested if there's
26:06
another toothpaste available so i will go and buy that of course that's a little bit different
26:11
because i need toothpaste anyway so that's a bad example but let's say i want to review maple candy
26:18
i don't need maple candy or you know some kind of gum or something so if i buy those products where
26:23
i wouldn't normally buy it for myself so that i can say yes there's a good product no it's not
26:27
a good product that's what those types of costs would cover okay and then basically after that
26:33
all those all those bills are covered then the basically it's going to be a 50 50 split between
26:39
saving for activities to do as a community i have contacted several labs i have yet to have or
26:47
an answer but i would love to pay as a community pay for food testing private food testing
26:53
cosmetic testing anything like that send it in verify that cleure you know shampoo really
27:00
is so salicylate free right how did they how did they do that like i want to know
27:05
which lab they're using so i can call them and ask them as well to independently verify
27:10
right that would be amazing so 50 of any proceeds will go toward that and then the
27:15
other 50 will go toward my student loans to pay off that beautiful shiny biology degree
27:21
that yeah i'm currently not really using for my daytime job but at least it's useful here so
27:33
oh yeah and i also out of that chunk of back into low-sal-life stuff also
27:39
pay for web developers or content editors to help beef up new programs on the website like
27:46
the recipe section is a little bit on the skimpy side it's about as big as my food list is
27:54
of available foods to eat so that is another type of project i would like to reinvest in
28:01
i don't have time to do it but maybe somebody i can pay somebody to do it so
28:08
all that welcome to my channel thanks for hanging out until the end sorry it's so long i don't know
28:16
how to do it any other way if only i could pay an editor to you know condense these down
28:21
i hope you enjoyed it and i hope that this kind of gives you an idea of like the ethics
28:28
and how and why i'm running this channel so with that i'm going to publish this and then i'm going
28:35
to do an informative video right after this so you'll see this shirt again because i am double
28:41
dipping on this holiday weekend all right that's all for now if you like this give it a thumbs up
28:46
you know what to do find me on instagram or facebook instagram's way easier for me to manage
28:53
and also go check out the website low-sal-life.com i will see you later go binge watch a whole bunch
28:59
of videos if you haven't watched any leave some comments down below you know the drill